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Reflection

I Got Rage Every Day On the Inside

The next question Jenna Kucher asks in How Are You, Really is “What fills you with rage?”

As it turns out, there are a lot of things that fill me with rage. The biggest one, though, is that we live in a world where labor has no value unless it actually brings in money instead of just saving money.

I get up early every day to make breakfast from scratch for my family. I also usually make lunch for our family, unless we’ve decided to get pizza. (We usually get enough of it to cover both lunch and supper.) Then I make snacks and supper for my family.

Up until I was able to get my teenager to learn how to use the washer and dryer, I was handling all of the laundry duties myself. When the clothes are dry, I sort them and put away all but my teenager’s clothes. (She’s very good about putting her own clothes away.)

I also take care of my children all day instead of putting them in daycare, which would cost us extra money. My toddler is having a hard time listening to her body, so we’re still working on potty training. Up until a month ago, our school district’s preschool wasn’t even free for local students, but now that it is, the prospective students have to be fully potty trained to be enrolled, and enrollment ended in June. My teenager is mostly less work, but she also has autism, so that presents separate challenges, such as how long it took to teach her to use the washer and dryer.

The bulk of housekeeping falls to me as well, as I am unable to work outside of our home due to my multiple disabilities, including being legally blind. This is fair, because my husband works full-time and earns an income to pay the bills. He does take care of the yard and sweeping and mopping or vacuuming the floors once a week, and he does a wonderful job. He also dusts places I can’t reach on my own. I take care of everything else from washing and putting away the dishes to scrubbing the toilet.

We are very much a team.

Additionally, I’m in charge of buying whatever we need and somehow making it all fit within our means. It’s getting harder and harder with inflation. I’m going without to make sure my husband and kids have what they need. I take fewer showers to keep the water bill down (and given that my medications make me very prone to heat stroke, I don’t get out much). I eat less than I normally do to ensure that they get as much food as they want (and I sometimes eat what they leave behind, if they haven’t spit in it or made it disgusting some other way). I’ve been doing what I can to cut down my consumption of soda and energy drinks so that they last longer, though I pretty much run on caffeine because I’m exhausted.

On top of that, I wake up whenever the kids wake in the middle of the night to ensure they don’t disturb anyone else. My toddler had a particularly rough patch recently, and it was a real battle to ensure she got all of the sleep she needs. A lot of times, I would end up sleeping with her, which was really hard on my back. But still, I had to get up early and take care of my duties.

I don’t get days off.

I don’t get sick days, although the family is patient with me when I take a little longer to get stuff done.

I do remind them to remind me when they need things like shampoo or deodorant or a particular pair of socks because I don’t have x-ray vision and don’t make a habit of checking their spaces. The only person who gets a pass is the toddler, because she doesn’t need much beyond a stack of pullups and wipes, a clean potty, clean clothes, food, snacks, milk, and a charged kindle. (Keeping her room cleaned up is a lost cause right now, but we’re working on it.)

These are the sacrifices I willingly make for my family.

This is the work I can do.

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